“Collaboration. Transparency. Urgency.” These words are the mantra of SynGAP Research Fund, a non-profit with a mission to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies, and support systems.

In this episode, hear founder Mike Graglia share the story of his son, one of the many warriors fighting SynGAP, which lead to Mike and his wife Ashley founding the 501(c)(3) public charity.